We started to explore marijuana, CBD, and THC for seizures when we heard about Charlotte’s story. Charlotte has Dravet syndrome, febrile, and afebrile status epilepticus. She was having 50 generalized tonic clonic seizures a day. She was also on 8 anticonvulsant medications.
Dravet Syndrome is a severe form of intractable epilepsy and it usually starts before the age of 1. Intractable means the seizures are not controlled by medication.
When Charlotte was 5 years old, she had significant cognitive and motor delays. She required a feeding tube and needed much more care. Charlotte’s family was desperately seeking help. They looked into the benefits of CBD.
They started to test a type of marijuana that was high in CBD and low in THC. Her parents began giving Charlotte low doses of plant extract and started to increase the dose over time.
- Month 3; >90% reduction in generalized tonic- clonic seizures and weaned from other AEDs.
- Month 20: 2-3 nocturnal generalized tonic clonic seizures per month and feeds and drinks by herself and autistic behaviors have improvement, walking and talking.